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Rare Disease

Homepage Rare Disease

EKPF Annual Summit, October 7 and General Assembly October 8, 2026

Alliances, kidney, Rare Disease
CKD, empowering patients, kidney diseases, Rare Disease, trasplantation

EKPF Annual Summit 2026 | EKPF The EKPF Annual Summit 2026 will take place in Krakow, Poland, on October 7,…

29 September 2026
0
28

58th ESPN Annual Meeting, September 30 – October 03, 2026

Alliances, kidney, News, Rare Disease
CKD, Congress, empowering patients, kidney diseases, Rare Disease

FEDERG, the Federation of European Associations of Patients with Rare and Genetic Kidney Diseases, will participate in the 58th European…

29 September 2026
0
26

AIRG, 21st Annual Meeting in Madrid, January 17, 2026

News, Rare Disease
empowering patients, kidney diseases, Patients Day, Rare Disease

The Association for Information and Research on Genetic Kidney Diseases (AIRG-Spain) will hold its 21st Annual Meeting on Saturday, January…

11 January 2026
0
1630

FEDERG participation at ERA Congress 2024.

kidney diseases, Rare Disease
Conferences, Meetings

Christian Scheidler from ADTKD Germany, Juan Carlos Julián from ALCER Spain, Flavia Galletti from AIRP Italy and Susie Gear from…

1 August 2024
0
1048

f2f FEDERG Metting, Fighting for our Federation, 10 years, 2024.

CKD, ERN-Erknet, EURORDIS, kidney diseases, Rare Disease, trasplantation
Education, Health, Meetings

FEDERG, moving forward and fighting for rare and genetic kidney diseases

1 August 2024
0
1202

FEDERG participation at ERA Congress 2023.

Congress, kidney diseases, Rare Disease
Conferences

Tess Harris, FEDERG President, and Susanna Carvajal (FEDERG Secretary) represented FEDERG at the 60th European Renal Association Congress in Milan…

1 August 2024
0
0

Representation of FEDERG at the ERA Congress, Stockholm from May 23 to 26.

Rare Disease
CKD, EURORDIS, Rare Disease

From May 23 to 27, the ERA European Renal Association Congress took place in Stockholm. Representatives of patients and members…

23 June 2024
0
2329

FEDERG at the 47th Congress of the AENP Spanish Association of Pediatric Nephrology, May 2024.

Education, Rare Disease
CKD, kidney diseases, Rare Disease, trasplantation

Susana Carvajal Arjona (FEDERG, hipofam) Mireya Carratalá (FEDERG ASHUA)

25 May 2024
0
2757

FEDERG in 53rd Congress of the Spanish Society of Nephrology 2023.FEDERG in

Education, Rare Disease
EURORDIS, HIPOFAM, Rare Disease

From November 11 to 13, Palau de Congresos Palma de Mallorca 2023. Within the framework of the 53rd Congress of…

11 November 2023
0
2408

FEDERG participation at ERA Congress 2023

Rare Disease
EURORDIS, HIPOFAM, Rare Disease

Date:               15-18 June 2023Venue:            MICO, MilanAttendees:      Tess Harris (President, FEDERG) and Susana Carvajal (Secretary of FEDERG) Tess Harris, FEDERG President,…

18 June 2023
0
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About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

FEDERG Homepage

Upcoming Events

  • EKHA–European Kideney Forum — Kidney Health Disparities, Adresssing the Gender Gap, October 13, 2026 Tuesday, 29, Sep
  • EKPF Annual Summit, October 7 and General Assembly October 8, 2026 Tuesday, 29, Sep
  • 58th ESPN Annual Meeting, September 30 – October 03, 2026 Tuesday, 29, Sep

Member activities

   

FEDERG Representations

   

 

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SearchPosts
Tuesday, 29, Sep
EKHA–European Kideney Forum — Kidney Health Disparities, Adresssing the Gender Gap, October 13, 2026
Tuesday, 29, Sep
EKPF Annual Summit, October 7 and General Assembly October 8, 2026
Tuesday, 29, Sep
58th ESPN Annual Meeting, September 30 – October 03, 2026
Tuesday, 7, Jul
EKHA Webinar From Care to cure, an EU wide Network, Advancing Rare Kidney Disease healthcare and research, July 7, 2026
Thursday, 12, Mar
World Kidney Day 2026
Friday, 27, Feb
FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”