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Education

Homepage Education

FEDERG support the adoption of the WHA Resolution on Rare Diseases.

Education, Rare Disease, Uncategorized

Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we…

16 September 2025
0
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FEDERG strongly support the WHA Resolution on rare Diseases

Education, Enviroment, News, Rare Disease, Uncategorized

May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…

9 June 2025
0
1605

Fighting for our federation Federg f2f Members meeting September 14 Martorell

Charity, Education, News, Rare Disease

The members of FEDERG, the Federation of Groups of patients affected by a genetic and rare kidney disease, met to…

19 September 2024
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2646

FEDERG at the 47th Congress of the AENP Spanish Association of Pediatric Nephrology, May 2024.

Education, Rare Disease
CKD, kidney diseases, Rare Disease, trasplantation

Susana Carvajal Arjona (FEDERG, hipofam) Mireya Carratalá (FEDERG ASHUA)

25 May 2024
0
2757

FEDERG in 53rd Congress of the Spanish Society of Nephrology 2023.FEDERG in

Education, Rare Disease
EURORDIS, HIPOFAM, Rare Disease

From November 11 to 13, Palau de Congresos Palma de Mallorca 2023. Within the framework of the 53rd Congress of…

11 November 2023
0
2408

About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

FEDERG Homepage

Upcoming Events

  • EKHA–European Kideney Forum — Kidney Health Disparities, Adresssing the Gender Gap, October 13, 2026 Tuesday, 29, Sep
  • EKPF Annual Summit, October 7 and General Assembly October 8, 2026 Tuesday, 29, Sep
  • 58th ESPN Annual Meeting, September 30 – October 03, 2026 Tuesday, 29, Sep

Member activities

   

FEDERG Representations

   

 

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SearchPosts
Tuesday, 29, Sep
EKHA–European Kideney Forum — Kidney Health Disparities, Adresssing the Gender Gap, October 13, 2026
Tuesday, 29, Sep
EKPF Annual Summit, October 7 and General Assembly October 8, 2026
Tuesday, 29, Sep
58th ESPN Annual Meeting, September 30 – October 03, 2026
Tuesday, 7, Jul
EKHA Webinar From Care to cure, an EU wide Network, Advancing Rare Kidney Disease healthcare and research, July 7, 2026
Thursday, 12, Mar
World Kidney Day 2026
Friday, 27, Feb
FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”