•  
  •  
FEDERG
  • Donate
  • Menu Canvas
    • HOME
    • ABOUT FEDERG
      • WHAT WE DO
      • OURS MEMBERS
      • GOVERNANCE, STATUES & FINANCIAL STATEMENTS
      • COLLABORATIONS
    • PATIENT STORIES
    • NEWS & EVENTS
      • UPCOMING EVENTS
      • EVENTS
      • FEDERG REPRESENTATIONS
      • MEMBERS ACTIVITIES
      • USEFUL LINKS
    • CONTACT
    • Sidebar

      Tags

      CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
FEDERG
Send us
an email
  • ABOUT FEDERG
    • WHAT WE DO
    •  Why our name matters
    • OURS MEMBERS
    • GOVERNANCE, STATUES & FINANCIAL STATEMENTS
    • FEDERG Strategic Plan 2026 – 2029
  • COLLABORATIONS
    • Collaborating with EKHA
  • NEWS & EVENTS
    • UPCOMING EVENTS
    • FEDERG REPRESENTATIONS
    • MEMBERS ACTIVITIES
    • USEFUL LINKS
  • CONTACT
  • PATIENT STORIES
  • SEARCH

Rare Disease

Homepage Rare Disease

EKPF Annual Summit, October 7 and General Assembly October 8, 2026

Alliances, kidney, Rare Disease
CKD, empowering patients, kidney diseases, Rare Disease, trasplantation

EKPF Annual Summit 2026 | EKPF The EKPF Annual Summit 2026 will take place in Krakow, Poland, on October 7,…

29 September 2026
0
133

58th ESPN Annual Meeting, September 30 – October 03, 2026

Alliances, kidney, News, Rare Disease
CKD, Congress, empowering patients, kidney diseases, Rare Disease

FEDERG, the Federation of European Associations of Patients with Rare and Genetic Kidney Diseases, will participate in the 58th European…

29 September 2026
0
136

AIRG, 21st Annual Meeting in Madrid, January 17, 2026

News, Rare Disease
empowering patients, kidney diseases, Patients Day, Rare Disease

The Association for Information and Research on Genetic Kidney Diseases (AIRG-Spain) will hold its 21st Annual Meeting on Saturday, January…

11 January 2026
0
1697

Members activities Newsletter, volume 2.

News, Rare Disease, Uncategorized

We are proud to present the latest newsletter from FEDERG, the federation uniting European associations of patients affected by rare…

16 September 2025
0
1510

FEDERG support the adoption of the WHA Resolution on Rare Diseases.

Education, Rare Disease, Uncategorized

Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we…

16 September 2025
0
1298

FEDERG strongly support the WHA Resolution on rare Diseases

Education, Enviroment, News, Rare Disease, Uncategorized

May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…

9 June 2025
0
1642

Fighting for our federation Federg f2f Members meeting September 14 Martorell

Charity, Education, News, Rare Disease

The members of FEDERG, the Federation of Groups of patients affected by a genetic and rare kidney disease, met to…

19 September 2024
0
2684

Representation of FEDERG at the ERA Congress, Stockholm from May 23 to 26.

Rare Disease
CKD, EURORDIS, Rare Disease

From May 23 to 27, the ERA European Renal Association Congress took place in Stockholm. Representatives of patients and members…

23 June 2024
0
2358

FEDERG at the 47th Congress of the AENP Spanish Association of Pediatric Nephrology, May 2024.

Education, Rare Disease
CKD, kidney diseases, Rare Disease, trasplantation

Susana Carvajal Arjona (FEDERG, hipofam) Mireya Carratalá (FEDERG ASHUA)

25 May 2024
0
2783

FEDERG in 53rd Congress of the Spanish Society of Nephrology 2023.FEDERG in

Education, Rare Disease
EURORDIS, HIPOFAM, Rare Disease

From November 11 to 13, Palau de Congresos Palma de Mallorca 2023. Within the framework of the 53rd Congress of…

11 November 2023
0
2433
Newer
12
Older

About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

FEDERG Homepage

Upcoming Events

  • EKHA–European Kideney Forum — Kidney Health Disparities, Adresssing the Gender Gap, October 13, 2026 Tuesday, 29, Sep
  • EKPF Annual Summit, October 7 and General Assembly October 8, 2026 Tuesday, 29, Sep
  • 58th ESPN Annual Meeting, September 30 – October 03, 2026 Tuesday, 29, Sep

Member activities

   

FEDERG Representations

   

 

Copyright ©2021-2025 FEDERG. All Rights Reserved
SearchPosts
Tuesday, 29, Sep
EKHA–European Kideney Forum — Kidney Health Disparities, Adresssing the Gender Gap, October 13, 2026
Tuesday, 29, Sep
EKPF Annual Summit, October 7 and General Assembly October 8, 2026
Tuesday, 29, Sep
58th ESPN Annual Meeting, September 30 – October 03, 2026
Tuesday, 7, Jul
EKHA Webinar From Care to cure, an EU wide Network, Advancing Rare Kidney Disease healthcare and research, July 7, 2026
Thursday, 12, Mar
World Kidney Day 2026
Friday, 27, Feb
FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”