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Rare Disease

Homepage Rare Disease

AIRG, 21st Annual Meeting in Madrid, January 17, 2026

News, Rare Disease
empowering patients, kidney diseases, Patients Day, Rare Disease

The Association for Information and Research on Genetic Kidney Diseases (AIRG-Spain) will hold its 21st Annual Meeting on Saturday, January…

11 January 2026
0
96

FEDERG participation at ERA Congress 2024.

kidney diseases, Rare Disease
Conferences, Meetings

Christian Scheidler from ADTKD Germany, Juan Carlos Julián from ALCER Spain, Flavia Galletti from AIRP Italy and Susie Gear from…

1 August 2024
0
635

f2f FEDERG Metting, Fighting for our Federation, 10 years, 2024.

CKD, ERN-Erknet, EURORDIS, kidney diseases, Rare Disease, trasplantation
Education, Health, Meetings

FEDERG, moving forward and fighting for rare and genetic kidney diseases

1 August 2024
0
762

FEDERG participation at ERA Congress 2023.

Congress, kidney diseases, Rare Disease
Conferences

Tess Harris, FEDERG President, and Susanna Carvajal (FEDERG Secretary) represented FEDERG at the 60th European Renal Association Congress in Milan…

1 August 2024
0
0

Representation of FEDERG at the ERA Congress, Stockholm from May 23 to 26.

Rare Disease
CKD, EURORDIS, Rare Disease

From May 23 to 27, the ERA European Renal Association Congress took place in Stockholm. Representatives of patients and members…

23 June 2024
0
1657

FEDERG at the 47th Congress of the AENP Spanish Association of Pediatric Nephrology, May 2024.

Education, Rare Disease
CKD, kidney diseases, Rare Disease, trasplantation

Susana Carvajal Arjona (FEDERG, hipofam) Mireya Carratalá (FEDERG ASHUA)

25 May 2024
0
2124

FEDERG in 53rd Congress of the Spanish Society of Nephrology 2023.FEDERG in

Education, Rare Disease
EURORDIS, HIPOFAM, Rare Disease

From November 11 to 13, Palau de Congresos Palma de Mallorca 2023. Within the framework of the 53rd Congress of…

11 November 2023
0
1815

FEDERG participation at ERA Congress 2023

Rare Disease
EURORDIS, HIPOFAM, Rare Disease

Date:               15-18 June 2023Venue:            MICO, MilanAttendees:      Tess Harris (President, FEDERG) and Susana Carvajal (Secretary of FEDERG) Tess Harris, FEDERG President,…

18 June 2023
0
1012

Patient partnerships in rare disease research

Rare Disease
EURORDIS, HIPOFAM, Rare Disease

In 2019, Professor Joost Hoenderop was one of the 21 successful applicants to the JTCs of the EJP RD. He…

11 September 2020
0
5844

About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

FEDERG Homepage

Latest News

  • Alport Syndrome Patient Information Day on September 6th, 2026! Wednesday, 14, Jan
  • AIRG, 21st Annual Meeting in Madrid, January 17, 2026 Sunday, 11, Jan
  • Members activities Newsletter, volume 2. Tuesday, 16, Sep

Tags

CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
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SearchPosts
Wednesday, 14, Jan
Alport Syndrome Patient Information Day on September 6th, 2026!
Sunday, 11, Jan
AIRG, 21st Annual Meeting in Madrid, January 17, 2026
Tuesday, 16, Sep
Members activities Newsletter, volume 2.
Tuesday, 16, Sep
FEDERG support the adoption of the WHA Resolution on Rare Diseases.
Monday, 9, Jun
FEDERG strongly support the WHA Resolution on rare Diseases
Thursday, 19, Sep
Fighting for our federation Federg f2f Members meeting September 14 Martorell