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HIPOFAM

Homepage HIPOFAM

FEDERG in 53rd Congress of the Spanish Society of Nephrology 2023.FEDERG in

Education, Rare Disease
EURORDIS, HIPOFAM, Rare Disease

From November 11 to 13, Palau de Congresos Palma de Mallorca 2023. Within the framework of the 53rd Congress of…

11 November 2023
0
1921

FEDERG participation at ERA Congress 2023

Rare Disease
EURORDIS, HIPOFAM, Rare Disease

Date:               15-18 June 2023Venue:            MICO, MilanAttendees:      Tess Harris (President, FEDERG) and Susana Carvajal (Secretary of FEDERG) Tess Harris, FEDERG President,…

18 June 2023
0
1104

Patient partnerships in rare disease research

Rare Disease
EURORDIS, HIPOFAM, Rare Disease

In 2019, Professor Joost Hoenderop was one of the 21 successful applicants to the JTCs of the EJP RD. He…

11 September 2020
0
5893

About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

FEDERG Homepage

Latest News

  • FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda” Friday, 27, Feb
  • Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026 Friday, 27, Feb
  • Alport Syndrome Patient Information Day on September 6th, 2026! Wednesday, 14, Jan

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CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
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SearchPosts
Friday, 27, Feb
FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”
Friday, 27, Feb
Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026
Wednesday, 14, Jan
Alport Syndrome Patient Information Day on September 6th, 2026!
Sunday, 11, Jan
AIRG, 21st Annual Meeting in Madrid, January 17, 2026
Tuesday, 16, Sep
Members activities Newsletter, volume 2.
Tuesday, 16, Sep
FEDERG support the adoption of the WHA Resolution on Rare Diseases.