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FEDERG strongly support the WHA Resolution on rare Diseases

Homepage Education FEDERG strongly support the WHA Resolution on rare Diseases

FEDERG strongly support the WHA Resolution on rare Diseases

Susana Carvajal Arjona
9 June 2025
Education, Enviroment, News, Rare Disease, Uncategorized

May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming that rare diseases are a global health priority. The adoption of this Resolution by WHO Member States marks a powerful step forward in ensuring equity, visibility, and inclusion for the 300 million people living with a rare disease around the world.

FEDERG as ,member of Rare Diseases International, we are proud to have contributed to this incredible achievement — a true testament to the strength of collective advocacy and international cooperation. We thank the the 41 Member States who co-sponsored the Resolution — with special acknowledgment to the leadership of Egypt and Spain, who played a key role in driving this initiative forward — and to the 275 civil society organizations who rallied behind this call. Your leadership and support have made history.

Susana Carvajal (FEDERG) Juan Carrión (Feder, Federación Española de Enfermedades Raras) Stephanie Sénéchal (AIRG Suisse)

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About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

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  • FEDERG strongly support the WHA Resolution on rare Diseases Monday, 9, Jun
  • Fighting for our federation Federg f2f Members meeting September 14 Martorell Thursday, 19, Sep
  • F2f FEDERG Meeting, Fighting for our Federation, 10 years, 2024. Thursday, 1, Aug

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Monday, 9, Jun
FEDERG strongly support the WHA Resolution on rare Diseases
Thursday, 19, Sep
Fighting for our federation Federg f2f Members meeting September 14 Martorell
Thursday, 1, Aug
F2f FEDERG Meeting, Fighting for our Federation, 10 years, 2024.
Thursday, 1, Aug
FEDERG BOARD 2024-2026
Sunday, 23, Jun
Representation of FEDERG at the ERA Congress, Stockholm from May 23 to 26.
Saturday, 25, May
FEDERG at the 47th Congress of the AENP Spanish Association of Pediatric Nephrology, May 2024.