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FEDERG BOARD 2024-2026

Homepage Uncategorized FEDERG BOARD 2024-2026

FEDERG BOARD 2024-2026

Susana Carvajal Arjona
1 August 2024
Uncategorized

This is the Board of Directors team that continues the work of FEDERG management from 2024 to 2026 after the sad news of the death of our honorable president Teresa Harris on March 1st. Michel Schenkel (AIRG Belgium) as treasurer, Juan Carlos Julian (Alcer Spain) and Karlheinz Steinecker (AIRG France) as members of the Board, Francisco Montfort (ASHUA Spain) as vice-president and Susana Carvajal Arjona (Hipofam, Hereditary Hypomagnesemias & Gitelman Syndrome Spain) as president and secretary of FEDERG. All of them kind and supportive collaborators work together as volunteers to continue with the legacy and mission of giving visibility to rare and genetic kidney diseases from the patient’s perspective for improvements in the care and treatment of these pathologies, promoting research and being an active part in decision-making regarding patient inclusion policies for kidney diseases.

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Recent Posts

  • FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda” Friday, 27, Feb
  • Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026 Friday, 27, Feb
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  • AIRG, 21st Annual Meeting in Madrid, January 17, 2026 Sunday, 11, Jan
  • Members activities Newsletter, volume 2. Tuesday, 16, Sep

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CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation

About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

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Latest News

  • FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda” Friday, 27, Feb
  • Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026 Friday, 27, Feb
  • Alport Syndrome Patient Information Day on September 6th, 2026! Wednesday, 14, Jan

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CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
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SearchPosts
Friday, 27, Feb
FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”
Friday, 27, Feb
Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026
Wednesday, 14, Jan
Alport Syndrome Patient Information Day on September 6th, 2026!
Sunday, 11, Jan
AIRG, 21st Annual Meeting in Madrid, January 17, 2026
Tuesday, 16, Sep
Members activities Newsletter, volume 2.
Tuesday, 16, Sep
FEDERG support the adoption of the WHA Resolution on Rare Diseases.