•  
  •  
FEDERG
  • Donate
  • Menu Canvas
    • HOME
    • ABOUT FEDERG
      • WHAT WE DO
      • MEMBERS
      • GOVERNANCE
      • COLLABORATIONS
    • RARE/GENETIC KIDNEY CONDITIONS
    • NEWS & EVENTS
      • NEWS
      • EVENTS
      • FEDERG REPRESENTATIONS NEWSLETTERS
      • MEMBERS ACTIVITIES NEWSLETTERS
      • USEFUL LINKS
    • CONTACT
    • Sidebar

      Tags

      CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
FEDERG
Send us
an email
  • HOME
  • ABOUT FEDERG
    • WHAT WE DO
    • MEMBERS
    • GOVERNANCE
    • COLLABORATIONS
  • RARE/GENETIC KIDNEY CONDITIONS
  • NEWS & EVENTS
    • NEWS
    • EVENTS
    • FEDERG REPRESENTATIONS NEWSLETTERS
    • MEMBERS ACTIVITIES NEWSLETTERS
    • USEFUL LINKS
  • CONTACT
  • NEWS
  • SEARCH

FEDERG BOARD 2024-2026

Homepage Uncategorized FEDERG BOARD 2024-2026

FEDERG BOARD 2024-2026

Susana Carvajal Arjona
1 August 2024
Uncategorized

This is the Board of Directors team that continues the work of FEDERG management from 2024 to 2026 after the sad news of the death of our honorable president Teresa Harris on March 1st. Michel Schenkel (AIRG Belgium) as treasurer, Juan Carlos Julian (Alcer Spain) and Karlheinz Steinecker (AIRG France) as members of the Board, Francisco Montfort (ASHUA Spain) as vice-president and Susana Carvajal Arjona (Hipofam, Hereditary Hypomagnesemias & Gitelman Syndrome Spain) as president and secretary of FEDERG. All of them kind and supportive collaborators work together as volunteers to continue with the legacy and mission of giving visibility to rare and genetic kidney diseases from the patient’s perspective for improvements in the care and treatment of these pathologies, promoting research and being an active part in decision-making regarding patient inclusion policies for kidney diseases.

Previous Story
Representation of FEDERG at the ERA Congress, Stockholm from May 23 to 26.
Next Story
F2f FEDERG Meeting, Fighting for our Federation, 10 years, 2024.

Related Articles

Alport Syndrome Patient Information Day on September 6th, 2026!

We are delighted to invite you to a special Alport...

Members activities Newsletter, volume 2.

We are proud to present the latest newsletter from FEDERG,...

Recent Posts

  • Alport Syndrome Patient Information Day on September 6th, 2026! Wednesday, 14, Jan
  • AIRG, 21st Annual Meeting in Madrid, January 17, 2026 Sunday, 11, Jan
  • Members activities Newsletter, volume 2. Tuesday, 16, Sep
  • FEDERG support the adoption of the WHA Resolution on Rare Diseases. Tuesday, 16, Sep
  • FEDERG strongly support the WHA Resolution on rare Diseases Monday, 9, Jun

Categories

  • Charity (1)
  • COVID-19 (1)
  • Education (5)
  • Enviroment (1)
  • News (4)
  • Rare Disease (10)
  • Uncategorized (6)

Tags

CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation

About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

FEDERG Homepage

Latest News

  • Alport Syndrome Patient Information Day on September 6th, 2026! Wednesday, 14, Jan
  • AIRG, 21st Annual Meeting in Madrid, January 17, 2026 Sunday, 11, Jan
  • Members activities Newsletter, volume 2. Tuesday, 16, Sep

Tags

CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
Copyright ©2021-2025 FEDERG. All Rights Reserved
SearchPosts
Wednesday, 14, Jan
Alport Syndrome Patient Information Day on September 6th, 2026!
Sunday, 11, Jan
AIRG, 21st Annual Meeting in Madrid, January 17, 2026
Tuesday, 16, Sep
Members activities Newsletter, volume 2.
Tuesday, 16, Sep
FEDERG support the adoption of the WHA Resolution on Rare Diseases.
Monday, 9, Jun
FEDERG strongly support the WHA Resolution on rare Diseases
Thursday, 19, Sep
Fighting for our federation Federg f2f Members meeting September 14 Martorell