FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”
A High-Level World Kidney Day Event at the European Parliament “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU…
Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026
Across communities and countries, 20 patient organizations have come together with one shared purpose: to change the future for people…
Alport Syndrome Patient Information Day on September 6th, 2026!
We are delighted to invite you to a special Alport Syndrome Patient Information Day on September 6th, 2026! This day…
Members activities Newsletter, volume 2.
We are proud to present the latest newsletter from FEDERG, the federation uniting European associations of patients affected by rare…
FEDERG support the adoption of the WHA Resolution on Rare Diseases.
Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we…
FEDERG strongly support the WHA Resolution on rare Diseases
May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…
F2f FEDERG Meeting, Fighting for our Federation, 10 years, 2024.
Our Federg members meeting is coming up at the Cultural (see the upcoming Events) Centre, Martorell, Barcelona province, Spain on…
FEDERG BOARD 2024-2026
This is the Board of Directors team that continues the work of FEDERG management from 2024 to 2026 after the…