Members activities Newsletter, volume 2.
We are proud to present the latest newsletter from FEDERG, the federation uniting European associations of patients affected by rare…
We are proud to present the latest newsletter from FEDERG, the federation uniting European associations of patients affected by rare…
May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…
The members of FEDERG, the Federation of Groups of patients affected by a genetic and rare kidney disease, met to…