FEDERG support the adoption of the WHA Resolution on Rare Diseases.
Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we…
Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we…
May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…
The members of FEDERG, the Federation of Groups of patients affected by a genetic and rare kidney disease, met to…
Susana Carvajal Arjona (FEDERG, hipofam) Mireya Carratalá (FEDERG ASHUA)
From November 11 to 13, Palau de Congresos Palma de Mallorca 2023. Within the framework of the 53rd Congress of…