•  
  •  
FEDERG
  • Donate
  • Menu Canvas
    • HOME
    • ABOUT FEDERG
      • WHAT WE DO
      • OURS MEMBERS
      • GOVERNANCE, STATUES & FINANCIAL STATEMENTS
      • COLLABORATIONS
    • RARE/GENETIC KIDNEY CONDITIONS
    • NEWS & EVENTS
      • UPCOMING EVENTS
      • EVENTS
      • FEDERG REPRESENTATIONS
      • MEMBERS ACTIVITIES
      • USEFUL LINKS
    • CONTACT
    • Sidebar

      Tags

      CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
FEDERG
Send us
an email
  • HOME
  • ABOUT FEDERG
    • WHAT WE DO
    • OURS MEMBERS
    • GOVERNANCE, STATUES & FINANCIAL STATEMENTS
    • COLLABORATIONS
  • RARE/GENETIC KIDNEY CONDITIONS
  • NEWS & EVENTS
    • UPCOMING EVENTS
    • EVENTS
    • FEDERG REPRESENTATIONS
    • MEMBERS ACTIVITIES
    • USEFUL LINKS
  • CONTACT
  • UPCOMING EVENTS
  • SEARCH

Education

Homepage Education

FEDERG support the adoption of the WHA Resolution on Rare Diseases.

Education, Rare Disease, Uncategorized

Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we…

16 September 2025
0
724

FEDERG strongly support the WHA Resolution on rare Diseases

Education, Enviroment, News, Rare Disease, Uncategorized

May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…

9 June 2025
0
1043

Fighting for our federation Federg f2f Members meeting September 14 Martorell

Charity, Education, News, Rare Disease

The members of FEDERG, the Federation of Groups of patients affected by a genetic and rare kidney disease, met to…

19 September 2024
0
1924

FEDERG at the 47th Congress of the AENP Spanish Association of Pediatric Nephrology, May 2024.

Education, Rare Disease
CKD, kidney diseases, Rare Disease, trasplantation

Susana Carvajal Arjona (FEDERG, hipofam) Mireya Carratalá (FEDERG ASHUA)

25 May 2024
0
2233

FEDERG in 53rd Congress of the Spanish Society of Nephrology 2023.FEDERG in

Education, Rare Disease
EURORDIS, HIPOFAM, Rare Disease

From November 11 to 13, Palau de Congresos Palma de Mallorca 2023. Within the framework of the 53rd Congress of…

11 November 2023
0
1918

About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

FEDERG Homepage

Latest News

  • FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda” Friday, 27, Feb
  • Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026 Friday, 27, Feb
  • Alport Syndrome Patient Information Day on September 6th, 2026! Wednesday, 14, Jan

Tags

CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
Copyright ©2021-2025 FEDERG. All Rights Reserved
SearchPosts
Friday, 27, Feb
FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”
Friday, 27, Feb
Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026
Wednesday, 14, Jan
Alport Syndrome Patient Information Day on September 6th, 2026!
Sunday, 11, Jan
AIRG, 21st Annual Meeting in Madrid, January 17, 2026
Tuesday, 16, Sep
Members activities Newsletter, volume 2.
Tuesday, 16, Sep
FEDERG support the adoption of the WHA Resolution on Rare Diseases.