World Kidney Day 2026
The Importance of World Kidney Day for European Rare Genetic Kidney Disease Patient Associations World Kidney Day is a key…
FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”
A High-Level World Kidney Day Event at the European Parliament “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU…
Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026
Across communities and countries, 20 patient organizations have come together with one shared purpose: to change the future for people…
Alport Syndrome Patient Information Day on September 6th, 2026!
We are delighted to invite you to a special Alport Syndrome Patient Information Day on September 6th, 2026! This day…
AIRG, 21st Annual Meeting in Madrid, January 17, 2026
The Association for Information and Research on Genetic Kidney Diseases (AIRG-Spain) will hold its 21st Annual Meeting on Saturday, January…
Members activities Newsletter, volume 2.
We are proud to present the latest newsletter from FEDERG, the federation uniting European associations of patients affected by rare…
FEDERG support the adoption of the WHA Resolution on Rare Diseases.
Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we…
FEDERG strongly support the WHA Resolution on rare Diseases
May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…
Fighting for our federation Federg f2f Members meeting September 14 Martorell
The members of FEDERG, the Federation of Groups of patients affected by a genetic and rare kidney disease, met to…
F2f FEDERG Meeting, Fighting for our Federation, 10 years, 2024.
Our Federg members meeting is coming up at the Cultural (see the upcoming Events) Centre, Martorell, Barcelona province, Spain on…