Alport Syndrome Patient Information Day on September 6th, 2026!
We are delighted to invite you to a special Alport Syndrome Patient Information Day on September 6th, 2026!
This day will be a great opportunity to:
- Connect with other young people and adults living with Alport Syndrome
- Share experiences and build a supportive community
- Learn about the latest knowledge, care strategies, and treatments to help you live well with Alport
Following the Patient Information Day, the next two days will explore in greater depth:
- Local and international research updates
- Clinical care and treatment developments
- Patient registries and ongoing clinical trials
We warmly welcome patient involvement throughout all sessions and truly value your perspectives and lived experiences.
✨ Young people and adults encouraged to participate!
We are especially keen to connect with young people and adults living with Alport Syndrome, and we would love for you to be part of these discussions.
If you or someone you know may be interested in participating, please contact us at:
Workshops workshops@alportsyndromealliance.org
We would be grateful if you could share this invitation with others in the Alport community. We look forward to connecting, learning, and growing together this September!
Warm regards,
The Alport Syndrome Alliance Team
