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Members activities Newsletter, volume 2.

Homepage News Members activities Newsletter, volume 2.

Members activities Newsletter, volume 2.

Susana Carvajal Arjona
16 September 2025
News, Rare Disease, Uncategorized

We are proud to present the latest newsletter from FEDERG, the federation uniting European associations of patients affected by rare genetic kidney diseases.

Our members continue to impress with their brilliant national initiatives, providing vital support to patients and families while driving awareness, research, and innovation. From organizing educational events and advocacy campaigns to partnering with leading scientists, their dedication is shaping a brighter future for everyone impacted by these rare conditions.

This newsletter highlights their inspiring achievements and the collective strength of our European network. Together, we are making sure that every voice is heard and every patient is supported.

federg members activities Newsletter nº2Download
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About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

FEDERG Homepage

Latest News

  • Alport Syndrome Patient Information Day on September 6th, 2026! Wednesday, 14, Jan
  • AIRG, 21st Annual Meeting in Madrid, January 17, 2026 Sunday, 11, Jan
  • Members activities Newsletter, volume 2. Tuesday, 16, Sep

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CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
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SearchPosts
Wednesday, 14, Jan
Alport Syndrome Patient Information Day on September 6th, 2026!
Sunday, 11, Jan
AIRG, 21st Annual Meeting in Madrid, January 17, 2026
Tuesday, 16, Sep
Members activities Newsletter, volume 2.
Tuesday, 16, Sep
FEDERG support the adoption of the WHA Resolution on Rare Diseases.
Monday, 9, Jun
FEDERG strongly support the WHA Resolution on rare Diseases
Thursday, 19, Sep
Fighting for our federation Federg f2f Members meeting September 14 Martorell