FEDERG support the adoption of the WHA Resolution on Rare Diseases.
Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we shift to implementation, the Coalition is rebranding to be called the Coalition for Advocacy for Rare Disease Equity (CARE). FEDERG support CARE and RDI members to brief them on the current status of the WHA Resolution, align on the next steps and discuss the different ways members can be involved. The goal is to maintain political and stakeholder momentum beyond the adoption of the Resolution to ensure that the implementation of the Resolution does not stall, and that Member States and the WHO are held accountable to move forward with their commitments, and to provide an opportunity for participants to share their experiences and perspectives on the work to come, as well as ask any clarifying questions regarding the significance of the Resolution, their involvement, and the next steps.
FEDERG contribute to the development of the RDI Strategy 2030. As a valued RDI member, our perspective will help ensure that RDI’s refined strategy aligns with global health priorities, adds value to shared initiatives, and builds on trusted collaboration. FEDERG input will strengthen our relevance, effectiveness, and ability to drive collective impact for persons living with a rare disease worldwide.https://www.rarediseasesinternational.org/vision-mission/#impactstrategy
