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UPCOMING EVENTS

Homepage UPCOMING EVENTS
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Uncategorized

FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”

A High-Level World Kidney Day Event at the European Parliament “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU…
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Uncategorized

Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026

Across communities and countries, 20 patient organizations have come together with one shared purpose: to change the future for people…
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Uncategorized

Alport Syndrome Patient Information Day on September 6th, 2026!

We are delighted to invite you to a special Alport Syndrome Patient Information Day on September 6th, 2026! This day…
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News, Rare Disease

AIRG, 21st Annual Meeting in Madrid, January 17, 2026

The Association for Information and Research on Genetic Kidney Diseases (AIRG-Spain) will hold its 21st Annual Meeting on Saturday, January…
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News, Rare Disease, Uncategorized

Members activities Newsletter, volume 2.

We are proud to present the latest newsletter from FEDERG, the federation uniting European associations of patients affected by rare…
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About Us

FEDERG is the non-profit federation of European associations of patients affected by rare and/or genetic kidney diseases.

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Latest News

  • FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda” Friday, 27, Feb
  • Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026 Friday, 27, Feb
  • Alport Syndrome Patient Information Day on September 6th, 2026! Wednesday, 14, Jan

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CKD Congress COVID-19 empowering patients ERN-Erknet EURORDIS HIPOFAM kidney diseases Patients Day Rare Disease trasplantation
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Friday, 27, Feb
FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”
Friday, 27, Feb
Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026
Wednesday, 14, Jan
Alport Syndrome Patient Information Day on September 6th, 2026!
Sunday, 11, Jan
AIRG, 21st Annual Meeting in Madrid, January 17, 2026
Tuesday, 16, Sep
Members activities Newsletter, volume 2.
Tuesday, 16, Sep
FEDERG support the adoption of the WHA Resolution on Rare Diseases.