FEDERG strongly support the WHA Resolution on rare Diseases
May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…
Fighting for our federation Federg f2f Members meeting September 14 Martorell
The members of FEDERG, the Federation of Groups of patients affected by a genetic and rare kidney disease, met to…
Representation of FEDERG at the ERA Congress, Stockholm from May 23 to 26.
From May 23 to 27, the ERA European Renal Association Congress took place in Stockholm. Representatives of patients and members…
FEDERG at the 47th Congress of the AENP Spanish Association of Pediatric Nephrology, May 2024.
Susana Carvajal Arjona (FEDERG, hipofam) Mireya Carratalá (FEDERG ASHUA)
FEDERG in 53rd Congress of the Spanish Society of Nephrology 2023.FEDERG in
From November 11 to 13, Palau de Congresos Palma de Mallorca 2023. Within the framework of the 53rd Congress of…
FEDERG participation at ERA Congress 2023
Date: 15-18 June 2023Venue: MICO, MilanAttendees: Tess Harris (President, FEDERG) and Susana Carvajal (Secretary of FEDERG) Tess Harris, FEDERG President,…
Patient partnerships in rare disease research
In 2019, Professor Joost Hoenderop was one of the 21 successful applicants to the JTCs of the EJP RD. He…