Alport Syndrome Patient Information Day on September 6th, 2026!
We are delighted to invite you to a special Alport Syndrome Patient Information Day on September 6th, 2026! This day…
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AIRG, 21st Annual Meeting in Madrid, January 17, 2026
The Association for Information and Research on Genetic Kidney Diseases (AIRG-Spain) will hold its 21st Annual Meeting on Saturday, January…
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Members activities Newsletter, volume 2.
We are proud to present the latest newsletter from FEDERG, the federation uniting European associations of patients affected by rare…
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FEDERG support the adoption of the WHA Resolution on Rare Diseases.
Earlier this year, a Coalition was formed to support the adoption of the WHA Resolution on Rare Diseases. As we…
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FEDERG strongly support the WHA Resolution on rare Diseases
May 2025 was a landmark month for RDI and the global rare disease community. The WHA Resolution on Rare Diseases was adopted, affirming…
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