The project FEDERG is an initiative led by a consortium of European patient groups/associations aiming at creating a Federation of European associations of patients affected by Renal Genetic diseases. FEDERG is an umbrella organization on renal genetic diseases in Europe. The FEDERG's basic goal is to build at European level, an umbrella organization on Renal Genetic Diseases (RGD),
with the objectives of being a voice of all patient concerns, facilitate the dissemination of knowledge, express solidarity among patients, ensure a fruitful relationship with professionals, weigh on the research agenda and on public health policy. In this endeavor, there are specific areas on which FEDERG wants to make a difference. By reaching a large number of associations, patient groups and families,
FEDERG wants to be able to accelerate research on RGD, to promote cohorts and registries, to mobilize more efficiently patients for clinical trials, to participate in the advisory boards of clinical trials, to raise funds for research, to help set the research agenda on RGD by contributing to develop international research strategies, and emerge as a strong European partner when international collaboration is desirable.