# FEDERG: Federation of European Patient Groups affected by Rare/Genetic Kidney Diseases

> FEDERG is the non\-profit federation of European associations of patients affected by rare and genetic kidney diseases\.

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## Pages
- [Testimony: “The Story of a Young Teenager: Growing Up with a Kidney Disease That Never Stops”](https://federg.org/patient-stories/story-of-a-young-teenager/)
- [PATIENT STORIES](https://federg.org/patient-stories/)
- [HOME](https://federg.org/)
- [Rare Kidney Disease Barometer 2026](https://federg.org/rare-kidney-disease-barometer-2026/)
- [Collaborating with EKHA](https://federg.org/european-kidney-health-alliance-ekha/)

## Posts
- [World Kidney Day 2026](https://federg.org/world-kidney-day-2026/)
- [Together, 20 patient organizations raise their voices for hope — better diagnosis, treatment, and research for rare genetic kidney diseases on RARE DISEASE DAY 2026](https://federg.org/together-20-patient-organizations-raise-their-voices-for-hope-better-diagnosis-treatment-and-research-for-rare-genetic-kidney-diseases-on-rare-disease-day-2026/)
- [FEDERG at the European Parliament event “Safe Hearts, Safe Kidneys: Elevating Kidney Health on the EU Agenda”](https://federg.org/federg-at-the-european-parliament-event-safe-hearts-safe-kidneys-elevating-kidney-health-on-the-eu-agenda/)
- [Alport Syndrome Patient Information Day on September 6th, 2026\!](https://federg.org/alport-syndrome-patient-information-day-on-september-6th-2026/)
- [AIRG, 21st Annual Meeting in Madrid, January 17, 2026](https://federg.org/airg-21st-annual-meeting-in-madrid-january-17-2026/)

## Events
- [World Orphan Drugs Barcelona 2024](https://federg.org/event/world-orphan-drugs-barcelona-2024/)
- [Federg in RDI Rare diseases International, members meeting, Barcelona 21\-25 october,2024](https://federg.org/event/federg-in-rdi-rare-diseases-international-members-meeting-barcelona-21-25-october2024/)
- [EKPF European Kidney Patient Federation, Annual summit 2024](https://federg.org/event/ekpf-annual-summit-2024/)
- [FEDERG at the 47th Congress of the Spanish Association of Nephrology in Bilbao 2024](https://federg.org/event/federg-at-the-47th-congress-of-the-spanish-association-of-nephrology-in-bilbao-2024/)
- [FEDERG participation at ERA Congress 2024\.](https://federg.org/event/federg-participation-at-era-congress-2024/)

## Categories
- [Rare Disease](https://federg.org/category/rare-disease/)
- [Uncategorized](https://federg.org/category/uncategorized/)
- [Education](https://federg.org/category/education/)
- [News](https://federg.org/category/news/)
- [Enviroment](https://federg.org/category/enviroment/)

## Tags
- [Rare Disease](https://federg.org/tag/rare-disease/)
- [kidney diseases](https://federg.org/tag/kidney-diseases/)
- [CKD](https://federg.org/tag/ckd/)
- [EURORDIS](https://federg.org/tag/eurordis/)
- [HIPOFAM](https://federg.org/tag/hipofam/)

## Event Categories
- [Meetings](https://federg.org/events/category/meetings/)
- [Health](https://federg.org/events/category/health/)
- [Conferences](https://federg.org/events/category/conferences/)
- [Education](https://federg.org/events/category/education/)

## Optional
- [Sitemap index](https://federg.org/sitemap_index.xml)