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DTSTART;TZID=Europe/Brussels:20241021T120000
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DTSTAMP:20260408T032208
CREATED:20241018T055735Z
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UID:1977-1729512000-1729598400@federg.org
SUMMARY:Federg in RDI Rare diseases International\, members meeting\, Barcelona 21-25 october\,2024
DESCRIPTION:Being part of RDI Rare Disease International is one of the goals of our European kidney disease patient group. Joining forces and learning from larger groups to be part of the policies for the inclusion of rare diseases.
URL:https://federg.org/event/federg-in-rdi-rare-diseases-international-members-meeting-barcelona-21-25-october2024/
LOCATION:hotel SB Plaza Europa Barcelona\, Barcelona\, Catalunya\, Spain
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DTSTART;TZID=Europe/Brussels:20241023T080000
DTEND;TZID=Europe/Brussels:20241025T170000
DTSTAMP:20260408T032208
CREATED:20241018T072529Z
LAST-MODIFIED:20241018T072531Z
UID:1988-1729670400-1729875600@federg.org
SUMMARY:World Orphan Drugs Barcelona 2024
DESCRIPTION:Federg will be present at the World Orphan Drug Congress to present our federation of European patient groups affected by a rare genetic kidney disease. Our aim is to contact other European groups\, doctors\, researchers and pharmaceutical companies and learn about innovations in the treatment of our pathologies.
URL:https://federg.org/event/world-orphan-drugs-barcelona-2024/
LOCATION:Fira de Barcelona Montjuic\, Av. Maria Cristine s/n\, Barcelona\, Catalunya\, 08004\, Spain
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