FEDERG at the 47th Congress of the Spanish Association of Nephrology in Bilbao 2024
2024-05-22 00:00 - 2024-05-25 23:59 (Europe/Brussels) | Catalunya
Mireya Carratalá, Antonio Cabrera and Susana Carvajal, representing FEDERG, Alcer, Hipofam, Ahua and AIRG Spain, participated in the Congress. The topics addressed cover a wide range of relevant aspects in pediatric nephrology, from advances in diagnosis and treatment to comprehensive care and the well-being of our young patients. Airg Spain projects for research, Alcer camps for children with CKD, Recommendations for patients in the transition from childhood to adolescence, and research projects on hereditary hypomagnesemias were some of the topics addressed by patients at this congress.

FEDERG participation at ERA Congress 2024.
2024-05-23 00:00 - 2024-05-26 23:59 | Catalunya
Christian Scheidler from ADTKD Germany, Juan Carlos Julián from ALCER Spain, Flavia Galletti from AIRP Italy and Susie Gear from Alport UK, are European patient groups members of FEDERG and were present at the ERA 2024 Congress in Stockholm from 23 to 26 May.

f2f FEDERG Metting, Fighting for our Federation, 10 years, 2024.
2024-09-14 12:00 - 17:00 | Centre Cultural de Martorell, Plaça de les Cultures s/n 1st Floor, Martorell, Barcelona, 08760, Spain
FEDERG f2f Meeting in Martorell,

September 14, 2024: “Fighting for our federation” 10 YEARS

From 12am to 7pm

EKPF European Kidney Patient Federation, Annual summit 2024
2024-10-17 00:00 - 2024-10-18 23:59 | NH Collection Berlin Mitte Friedrichstrasse, Friedrichstrasse , 96,, Berlin, 10117, Germany
EKPF The European Kidney Patient Federation Members Day will take place in Berlin on 17 October 2024 and its General Assembly of members on 18 October. Federg is an active member of the EKPF and will attend this patient event. Our goal is to join forces with other non-genetic kidney patient associations and create policies to bring them closer together in order to act as a single force.

Federg in RDI Rare diseases International, members meeting, Barcelona 21-25 october,2024
2024-10-21 12:00 - 2024-10-22 12:00 | hotel SB Plaza Europa Barcelona, Barcelona, Catalunya, Spain
Being part of RDI Rare Disease International is one of the goals of our European kidney disease patient group. Joining forces and learning from larger groups to be part of the policies for the inclusion of rare diseases.

World Orphan Drugs Barcelona 2024
2024-10-23 08:00 - 2024-10-25 17:00 | Fira de Barcelona Montjuic, Av. Maria Cristine s/n, Barcelona, Catalunya, 08004, Spain
Federg will be present at the World Orphan Drug Congress to present our federation of European patient groups affected by a rare genetic kidney disease. Our aim is to contact other European groups, doctors, researchers and pharmaceutical companies and learn about innovations in the treatment of our pathologies.
