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DTSTART;TZID=Europe/Brussels:20241017T000000
DTEND;TZID=Europe/Brussels:20241018T235959
DTSTAMP:20261014T225158
CREATED:20241016T083006Z
LAST-MODIFIED:20241018T055121Z
UID:1945-1729123200-1729295999@federg.org
SUMMARY:EKPF European Kidney Patient Federation\, Annual summit 2024
DESCRIPTION:EKPF The European Kidney Patient Federation Members Day will take place in Berlin on 17 October 2024 and its General Assembly of members on 18 October. Federg is an active member of the EKPF and will attend this patient event. Our goal is to join forces with other non-genetic kidney patient associations and create policies to bring them closer together in order to act as a single force.
URL:https://federg.org/event/ekpf-annual-summit-2024/
LOCATION:NH Collection Berlin Mitte Friedrichstrasse\, Friedrichstrasse \, 96\,\, Berlin\, 10117\, Germany
CATEGORIES:Education,Health,Meetings
ATTACH;FMTTYPE=application/pdf:https://federg.org/wp-content/uploads/Agenda-EKPF-2024-Annual-Summit-and-General-Assembly.pdf
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BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20241021T120000
DTEND;TZID=Europe/Brussels:20241022T120000
DTSTAMP:20261014T225158
CREATED:20241018T055735Z
LAST-MODIFIED:20241018T055737Z
UID:1977-1729512000-1729598400@federg.org
SUMMARY:Federg in RDI Rare diseases International\, members meeting\, Barcelona 21-25 october\,2024
DESCRIPTION:Being part of RDI Rare Disease International is one of the goals of our European kidney disease patient group. Joining forces and learning from larger groups to be part of the policies for the inclusion of rare diseases.
URL:https://federg.org/event/federg-in-rdi-rare-diseases-international-members-meeting-barcelona-21-25-october2024/
LOCATION:hotel SB Plaza Europa Barcelona\, Barcelona\, Catalunya\, Spain
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20241023T080000
DTEND;TZID=Europe/Brussels:20241025T170000
DTSTAMP:20261014T225158
CREATED:20241018T072529Z
LAST-MODIFIED:20241018T072531Z
UID:1988-1729670400-1729875600@federg.org
SUMMARY:World Orphan Drugs Barcelona 2024
DESCRIPTION:Federg will be present at the World Orphan Drug Congress to present our federation of European patient groups affected by a rare genetic kidney disease. Our aim is to contact other European groups\, doctors\, researchers and pharmaceutical companies and learn about innovations in the treatment of our pathologies.
URL:https://federg.org/event/world-orphan-drugs-barcelona-2024/
LOCATION:Fira de Barcelona Montjuic\, Av. Maria Cristine s/n\, Barcelona\, Catalunya\, 08004\, Spain
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BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20260930T080000
DTEND;TZID=Europe/Brussels:20261002T183000
DTSTAMP:20261014T225159
CREATED:20260929T174141Z
LAST-MODIFIED:20260929T174143Z
UID:2482-1790755200-1790965800@federg.org
SUMMARY:58th ESPN Annual Meeting
DESCRIPTION:FEDERG will attend the 58th Annual Meeting of the European Society for Paediatric Nephrology (ESPN)\, taking place in Bordeaux\, France\, from September 30 to October 3\, 2026. As a representative of European patients\, FEDERG will participate with an exhibition stand and will also take part in the opening ceremony\, providing visibility for the patient perspective and strengthening collaboration with healthcare professionals and researchers in paediatric nephrology.
URL:https://federg.org/event/58th-espn-annual-meeting/
LOCATION:CONGRESS VENUE Palais des Congrès\, Av. Jean Gabriel Domergue\, Bordeaux\, 33300\, France
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BEGIN:VEVENT
DTSTART;TZID=Europe/Brussels:20261013T100000
DTEND;TZID=Europe/Brussels:20261013T113000
DTSTAMP:20261014T225159
CREATED:20260929T175922Z
LAST-MODIFIED:20260929T175924Z
UID:2490-1791885600-1791891000@federg.org
SUMMARY:European Kidney Forum 2026 - Kidney Health Disparities\, Adressing the Gender Gap
DESCRIPTION:The European Kidney Forum 2026 will focus on kidney health disparities and the gender gap in kidney disease\, bringing together European policymakers\, healthcare professionals\, researchers\, and patient representatives to address inequalities in prevention\, diagnosis\, treatment\, and access to care. \n\n\n\nFEDER will participate in the panel discussion\, advocating for greater recognition of the multiple roles of women in kidney disease—as patients\, caregivers\, and patient representatives and advocates. FEDER will highlight the challenges and needs faced by women across these different roles and call for a more gender-sensitive\, equitable\, and patient-centred approach to kidney health policies and care.
URL:https://federg.org/event/european-kidney-forum-2026-kidney-health-disparities-adressing-the-gender-gap/
LOCATION:European Parliament in Brussels
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