A call for research project on Alport syndrome: The call is financed by a group of European associations for Information and Research on Kidney Disease Genetic (AIRG). This group includes AIRG-France, AIRG-Spain and AIRG-Belgium. This tender, 2016, has a budget of 150.000 € (Hundred and fifty thousands) over two years to finance in 2016 and 2017, one or more innovative and targeted projects in this disease (Ref. 2016 ALPORT AIRG-FEB).

This is a full-fledged international call without geographical restriction.

For more information on the call, visit the web sites:

or contact:


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Alport Meeting in Göttingen

THE INTERNATIONAL WORKSHOP for ALPORT SYNDROME RESEARCH STRATEGY is ON:  Susie Gear from Alport UK and FEDERG and Professor Oliver Gross adressing the audience at the inaugural session Friday 25th 2015 Gottingen.

Some 100 participants, Nephrologists, Geneticists, patients’ representatives and pharmaceutical companies get together in Gottingen GERMANY at the invitation of Professor Oliver GROSS to shape the research for ALPORT SYNDROME.

During 3 days discussion will focus on Science and on how best organise the Alport Syndrome Community with the appropriate infrastructure for research (Registries, biobanks, etc..).

FEDERG is taking an important part in that endeavour through mainly Susie Gear from Alport UK, Daniel Renault from FEDERG and AIRG-France, Catherine Cabantous from AIRG-France.
The future of ALPORT Syndrome treatment will be discussed around the following 4 themes:
1   Basic and Translational Science, Gene/Chaperone Therapy
2    Diagnosis and Genetics
3     Standard of care, Repurposing Therapy, Carriers, Management of Extrarenal Symptoms
4     Future Therapy, Registries, Biobanks, Clinical Trial


Some impressions

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