ONE EUROPEAN VOICE: FOR THE PATIENTS AFFECTED BY RENAL GENETIC DISEASE
FEDERG is launched on june, 7th, 2013: 12 associations of 7 European countries and 1 international federation, had decided that day to join forces to create a Federation of European Associations of Patients affected by Renal Genetic Diseases, FEDERG, with the support of professionals organizations (ERA-EDTA and ESPN) and EURORDIS. FEDERG is now legally based in Brussels under Belgium law.
The FEDERG official launching photo:
Left to right front row: Michel Schenkel, Secretary FEDERG, AIRG-Belgium; Alain Essade, AIRG-Switzerland; Pr. Yves Pirson, Nephrologist Member of the FEDERG Scientific Council and Chair of the SC AIRG-Belgium; Etienne Cosyns AIRG Belgium; Claudia Sproedt Vice President FEDERG & Cystinosis Germany; Daniel Renault, President FEDERG & AIRG-France
Left to right back row: Leonard Woodward aHUS UK; Francisco Montfort FEDERG Board AIRG-Spain & AHUSa Spain; Laetitia Lepoix Cytisnosis France; Catherine Cabantous Webmaster FEDERG, AIRG-France; Marck Taylor Chair of Rare Renal Disease committee, Renal Association UK, Pr. Oliver Devuyst Nephrologist Chair of the FEDERG Scientific Council, Chair of WG IKD ERA-EDTA; Pr. Elena Levchentko Pediatric Nephrologist, Member of the FEDERG Scientific Council, ESPN; Susie Gear FEDERG Board, Alport Syndrome UK; Bruno Woitrin FEDERG Treasury & Chair AIRG-Belgium; Marjolein Bos Cystinsosis & RGD Netherland.
Participants not on the picture:
- Yann Le Cam CEO Eurordis (left before shooting)
- Oliver Gross Nephrologists Goettingen (On line)
- Tess Harris PKD International (On line)
- Veselina Dzhambazova (On line)